Announcing the release of "The Cytotoxic Kid". A true account of childhood lymphoma written from a mother's perspective.
How a 9 year old boy from the Gold Coast took on a rare form of cancer and won
At the age of 9, Jesse Cooper became one of the youngest people in Australia to be diagnosed with a rare form of cancer - Anaplastic Large Cell Lymphoma.
Cancer currently effects approximately 1 in 3 people and is rapidly moving towards a strike rate of 1 in 2! The saddest part of this very real statistic is that the majority of new cancer patients are children.
In July 2004, two days before his 9th birthday, Jesse was dropped off at school in the morning as usual. It was just another day. At lunchtime Jesse noticed a lump on his neck. It wasn't a bump, it was a lump, about the size of a plum. His school thought it was the 'mumps' and contacted his mother to come and collect him.
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Read all about the pre-diagnosis stage of Jesse's cancer. The trouble Jesse's parents had getting the cause of Jesse's 'lump' diagnosed. The medical procedures involved. The emotional impact it had on Jesse, his family and friends.
A Message From The Author
"This book was written for many reasons. When we received the diagnosis that our son had cancer, we needed to learn many things straight away. There wasn't much information about other pediatric cancer cases which explained things in laymans terms, or even any stories we could find from other parents about their childs fight. By writing this, I hope to help families and friends of other childhood cancer patients. To take you on a journey to the 'inside' so to speak. Many people do not realise how much more goes on behind the scenes with this illness and hopefully this book will break down some of the barriers.
I also wrote this book to help create more awareness about Lymphoma, the signs and symptoms to watch out for, to listen to your inner voice even when it seems nobody is listening to you. You have a right to ask questions, to be taken seriously. If it seems wrong to you then pursue it. Unfortunately Lymphoma will not show on routine blood tests and sometimes by the time it is picked up, it is too late. By some miracle, our son grew a lump which by rights shouldn't have shown itself until the later stages. We were lucky to catch his cancer reasonably early. Lymphoma is a disease which is ever on the increase right around the world. We need much more research and funding to be able to hopefully one day find a cure.
This story is a thank you to every person who helped us along the way. Every doctor and nurse, family member and friend. We couldn't have done it without your love and support. It has been an emotional time for me to write down all these memories, but well worth the effort. Every cancer is different and the way each child copes is different as well, but I hope that by reading this, parents are able to learn a little, family and friends are able to understand a little more than perhaps normally they would." Amanda Cooper, Author
Hi, my name is Tim Cooper and I'm Jesse's dad. In the days leading up to Jesse's diagnosis Amanda and I instinctively knew there was something seriously wrong with our little boy. As parents you 'just know', a gut instinct I suppose.
Although we had our suspicions, nothing could prepare us for the 'formal diagnosis' and what was to follow.
I remember sitting in that little room at the hospital on the afternoon of August 4, 2004 when the oncologist enthusiastically (almost cheerfully) announced that he knew what Jesse was suffering from. In hindsight, yes, there was cause to be enthusiastic at that point, because at least we all knew what he had and also how it was to be treated. Although we couldn't see it at time, this was indeed a good thing.
When the oncologist blurted out those four words - Anaplastic Large Cell Lymphoma the world started to spin, everything went very fuzzy and stayed that way for the next few months.
We tried to learn as must as we possibility could about Jesse's cancer, but at that time, information on childhood lymphoma and in particular Anaplastic Large Cell lymphoma was scarce and often contradictory.
In the early stages of Jesse's treatment, the nurses in the oncology ward explained to us all the things that Jesse 'would definitely' and 'could possibly' suffer from. But our heads were still in a spin, we were still in denial and quite frankly we couldn't, or more to the point, didn't want to consider any of the scenarios being presented to us.
When cancer strikes your family all areas of your life are affected - mental, emotional, physical and financial. The good news is you can find support for all these areas if you simply ask.
On top of the horrific experience your child is going through there is also the added stress of financial issues. When Jesse was diagnosed I was a full time student, four months out from graduation. While I was establishing a clientele and performing some contract work, my finances weren't great to begin with. It was an expensive exercise for us, we had to drive 100 kilometers for Jesse's treatments and outpatient visits, the cost of parking at the Childrens Hospital was close to criminal plus there was the added expense of buying meals etc. In a short space of time we found ourselves in a major financial crisis.
The point is, there is help. There are many organisations and charities that provide a level of financial assistance to families of cancer patients
Help is out there. It is stressful enough living with and caring for a child with cancer without stressing over how you are going to the pay the rent.
These things always happen to someone else, right?
Jesse was an extremely fit and healthily little boy prior to his 'lump' appearing. If anyone had suggested cancer to us we would have laughed. He lived in the country, ate all the right foods, exercised and played sport regularly.
Ok, I hear what you're saying. It won't happen to us. These things always happen to someone else, right?
Well, on August 4, 2004, Jesse become "someone else's someone else"
A Guide To Childhood Cancer
Amanda wrote this book, in part, as a guide to parents of children with cancer. Every case of cancer is different. Every child reacts differently to treatment. But the fundamentals are basically the same. Cancer, no matter what type, presents the child, family and friends with the same roller coaster ride.
We didn't know what to expect when Jesse was diagnosed. We had no appreciation of the far reaching implications of his treatment or the impact it would have on our lives for the duration of his treatment and the months following.
"The CytoToxic Kid" provides in depth information for family and friends of cancer patients.
Helpful Tips & Information
Woven into this true account of Jesse's treatment are helpful tips on how to help and support your child throughout the treatment. "The Cytotoxic Kid" also provides a wealth of information on a number of issues relating to cancer treatment - understanding staging, understanding blood results, common tests and what they tell you, the list goes on.
Once again, Amanda wanted to not only tell her story but provide an insight and understanding of the process.
"The Cytotoxic Kid is a Must Read!
Including over 80 photographs from pre-diagnosis through to remission, "The Cytotoxic Kid" is a must read for anybody affected by cancer. Whether you're a mum, dad, sibling, close relative, friend or caregiver, "The Cytotoxic Kid" will provide valuable insights and information. "The Cytotoxic Kid" is indeed a story of strength, fortitude and hope.
Order Now!
Through your $24.99 purchase of "The Cytotoxic Kid" you are also helping to support a number of cancer support and research groups. Either through affiliate sales or donation, a large percentage of the sales price of this book will go back to assist charitable, support and research associations perform their extremely important functions.
PLUS...
You also receive a copy of Jesse's Wish Journal. This is a full pictorial account of Jesse's Make-A-Wish trip to Melbourne. Truly the trip of a lifetime! Read about all the events leading up to the trip, starting with Jesse's involvement in the launch of the inaugural 'Wish Day' campaign. Then down to Melbourne, the stretch limos, the hotel, the big game at the MCG, the little penguins and so much more...
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